I know that I am completely out of the loop with all of you....I apologize for that. I wasn't able to comment on posts at all last week and then I left to go out of town and haven't been able to catch up on blogs for the past 4 days at all. I promise to try my best to catch up with all of you this week!
I got an email from my PCP at Kaiser on Friday afternoon regarding getting the blood thinning treatment through Kaiser. This was basically my last hoop that I needed to jump through to really get this next cycle settled. The email wasn't good. She basically said that my results of the anti-cardiolipin were not high enough for her to feel comfortable doing the lovenox treatment. This bothered me for a few different reasons... 1) Dr. B's nurse did not tell me where my anti-cardiolipin results fell, so it bothered me to hear they were on the "low" side. This basically tells me that this may not be the problem at all. If my results were on the low side...then this probably isn't the only contributing factor for why we haven't been able to conceive. Granted, it still may be PART of the reason....it isn't the only reason, and that means we still don't have all of our answers. 2) She isn't going to give me the treatment, and I still want to do it since I feel desperate and want to at least give it a try. She basically said that the risks of taking lovenox each day are too risky considering my results were so low.
Sooooo.....she made the recommendation that I see a perinatologist at Kaiser to talk about my results, see what he thinks, and talk about the risks of lovenox and my options. So, I went ahead and did that. I couldn't get in until next Wednesday, which less than 2 weeks from my scheduled transfer, so we are cutting it close. I don't like to cut things close...I like to have all of my ducks in a row way in advance.
I am kinda bummed out by all of this. Mostly to find out that my anti-cardiolipin results were so low....which means still no answers. But, I plan to meet with the perinatologist and basically just tell him that out of all of the tests we've had done over the past 3 years....this is the ONLY one that has come out even slightly out of range, so we really want to give the blood thinners a try. I'm hoping he sees things my way and thinks giving it a try would be okay....perhaps he will just recommend a different blood thinner...which is fine with me. But, I need to at least give this a shot.
Not much else going on. We had an AWESOME weekend in Telluride. Check out my family blog if you are interested in hearing more! I tried not to let Friday's email bother me over the weekend (I got it on our way up to Telluride.) I did start the Lupron on Friday night and tomorrow is my last day of birth control. Everything else on the long to-do list is pretty much checked except for the blood thinning treatment. I've been in contact with the woman who will be doing my acupuncture on the day of transfer...I was glad to get that settled.
Anyway, that's the latest with me. I hope the rest of you are doing well, and again....I will catch up with all of you this week!
XOXO!!!
3 comments:
Really, too low? Mine came in at "Indeterminate" at 19. I wonder if this is also where you fall. They said up to 13 is normal and 13-20 is indeterminate and 20 + is high.
Don't fret my dear, I am sure they will put you on baby aspirin and that should cover the auto immunity issue. Take comfort in knowing you are doing everything you can to make this work out, and the efforts will pay off!! I am still thinking about you, and SO EXCITED for your big day thisJUNE! Keep your chin up and fingers crossed!
My guess is that you're going to get a "no" on the Lovenox, but maybe you should try baby aspirin to counteract any minor clotting tendency. Unless you've had blood clots, have seriously elevated lab results for clotting disorder(s), and/or a rather dramatic history of losses you probably won't be able to get Lovenox because of the risk of side-effects. Also it's extremely expensive. Even with my history of two late losses and suspect results for three different clotting disorders, I still had to beg to try Lovenox from transfer with my last IVF. And I'm still not convinced that clotting problems are the source of all my problems.
Most likely you haven't gotten an explanation for your problems because it's something that just isn't discovered or understood yet. Still IVF does help lots of people with an "undetermined" diagnosis get their baby!
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